She/Her

breast cancer survivor, web dev professional, succulents, gaming, yarn crafts, 3d printing.

alt: StopForgettingIt@ piefed.social

alt: StopForgettingIt@ dbzer0.com

  • 0 Posts
  • 114 Comments
Joined 3 years ago
cake
Cake day: June 28th, 2023

help-circle

  • Hey so, I get you are trying to sound supportive, but let me offer some constructive feed back. (1) referring to someone’s reconstruction as correcting “disfigurement” is tone deaf at best and out right rude at worst. Read the room. (2) You don’t get to decide if a surgery is valid, be it cosmetic or otherwise. Only the person being operated on gets to make that call. You are looking from the outside in with 1% of the information the patient is working with. Your judgement on other peoples medical care is not needed or appreciated.



  • There is a lot of different answers to these questions, I’ll give you the jist, then my specific answer.

    Where does the breast tissue come from?

    There is two main ways to do reconstruction - the most comment is breast implant. In this case they remove all of the breast tissue and leave just the skin. The remaining space is filled with a implant and the size of the implant is determined by how much skin you have. The second way it can be done is to transplant tissue from another part of your body to the breast area, it is usually from either the belly area (DEIP Flap) or from the back area (TRAM Flap). This type of surgery requires the surgery match up the tissue transplant on a vascular level (vein by vein) to make sure the transplanted tissue does not die.

    I had a DEIP flap reconstruction - it requires almost a week hospital stay due to how complex the surgery is and recovery is 6-8 weeks, but honestly its been just about a two years and I am still recovering and also I have an additional revision surgery that I still need because - no I am not even close to being even.

    How does one sculpt a nipple?

    They typically do not. Normally the nipple is removed entirely. In the reconstruction I have heard of the nipple being rebuild but, its not nipple tissue, so its not the right color and it cannot react to environmental stimuli and from what I’ve seen, gets stuck sort of “hard”. When the nipple is removed most people will opt for a tattoo replacement. They look very very real and you don’t have the issue permanently smuggling raisins around. I was able to keep my nipple, visually it looks like a nipple, but I can no longer feel it.

    Are they as sensitive as before?

    No they lose all sensation, can’t even feel the skin, so not even like elbow skin, totally numb. They had to rebuild my stomach and belly button, so I also cannot feel anything across my lower abdomen either.

    Does having breast cancer on one side automatically increase the chances of cancer on the other side? I would think symmetry isn’t a given?

    No, the risk of recurrence is the same. If I was to have the same type of cancer in my other breast it would be a recurrence, not new cancer and after treatment my risk of recurrence is lower than my chance of getting a totally new type of cancer.

    Were you able or allowed to choose size and shape? (If so, did you go for the tried and true original?)

    Short answer no, long answer I was not very well endowed to begin with and my reconstruction was limited by the amount of tissue I could use for transplanting. So, again no and also they aren’t both the same size anymore, the reconstructed one is quite a bit smaller and not really the right shape, which is what I am going back in for more surgery to fix. If you had way more breast tissue than I did, there is more options for reconstruction, but from the woman I have talked to, most people end up going smaller or staying the same. Going up larger brings in a lot of complication and can only happen if you get a implant reconstruction and not a transplant.

    Hope you’re doing well today. Not a question, I just wanted to say (write) it. Live long and prosper.

    Thanks I plan on it 🖖

    Just want to also point out for readers that this entire comment is only about gender affirming care and has nothing to do with medically treating cancer, but because we are affirming my breasts for my gender as a cis woman, its just healthcare.


  • My 78 year old uncle feel for an Eastern European woman after his wife passed from COVID in 2021. It started with just chatting online with her, she was a real person, he talked with her on Facetime, this was before AI was so rampant.

    Then it progressed to him sending her small amount of money, like 50-100 here and there, not frequently enough for anyone to notice and he didn’t mention it at first. Then it progressed to larger amounts of money, but less frequently. At this point the family was catching on and once his son figured out what was going on, he had been scammed out of just over 50,000.

    His son now has full financial power of attorney and that scammer can’t get anymore money. My uncle unfortunately has pretty bad dementia now and he does not remember losing that money.













  • Its not a controversial take, lots of us in the sober community don’t mesh with AA. I would never bash another persons path to sobriety, but the way they look at people who get sober working the steps vs people who chose other paths doesn’t sit great with me. I also don’t like the direction AA steers people to feel helplessness around addiction and giving your recovery to a “higher power”. But like I said - what works for some may not work for others, and I would never stop anyone from finding and walking the right path to recovery from them, as I have for myself.

    If you see this and you are looking to experience sobriety and you are not feeling like AA is for you, there is lots of options out there like, Allen Carr’s Easyway, SMART recovery and Recovery Dharma just to name a few. But also please if you are struggling, feel free to DM me. I am always happy to talk.